Thank the Lord! It was a big surprise but the drs felt that Ian was up for coming home today! Instead of a 5 day dose of steroids, he only got 3. Apparently he was responding well & they didn't feel the need to keep giving him more. It is a "less is better" type of situation. His ataxia has already decreased quite a bit & he is able to get his hand to his mouth quite a bit now. His movements are more deliberate & he seems to be more relaxed over all.
Of course, we have not gotten anywhere near close to where we were before all this happened. He is being referred to ECI (Early Childhood Intervention) & will need the physical & occupational therapy to relearn gross & fine motor skills. The drs also said he will do much better at home, being motivated by familiar surroundings as well as his 2 sisters.
Honestly, we are just glad he is well. I have missed having my whole family under 1 roof. Through all this, we have had an outpouring of support. I want to particularly thank the mommies in my Just Mommies Playroom, the Northwest MOM group & also JV Baptist Church for reaching out to us. We are relieved to not have to cook meals as time is very precious around here & it happens to be used up on caring for the kids rather than cooking. Todd & I are very blessed to have the family & friends we have. There have been endless phone conversations & shoulders to cry on these past 2 weeks. THANK YOU GOD! We are some of the luckiest people in the world!
7 comments:
I am so glad to hear Ian is home. You and your family are in my thoughts and prayers daily. Way to go Ian.
Oma 6 (Dee's Mum - Nrthgirl)
How wonderful to have Ian back home! Continue to get stronger and stronger little Ian. Many people are rooting for you!
I'm so glad Ian is home and will be 100% back to normal with a little therapy!
I'm very impressed with your Mommy instinct and your judgment. When everyone (me included!) was telling you to just "relax", that Ian just needs some time, you knew better & took him to the hospital. That got him help so much quicker and, I'm sure, saved a lot of suffering.
I'll go back to lurking now:) but will continue to keep all of you in my prayers. Especially the little guy!
Monica
Oh I am so glad! I am sure you are so happy to have your babies together again. And I agree being home will help him a lot in getting back to his normal self. Still praying everyday for him!
I'm happy to hear that your little boy is home and doing better!!
You deserve all that you have Astrid! You are so giving - I know people feel great helping out (and returning the love so to speak). Tons of prayers for you guys! Keep us posted. Hugs ~ A
Hey Sister! I am so glad Ian is doing better. I have been praying for him! I can't even imagine what you have been going through!
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