The testing process started last night. They did a CT scan & it came back normal. They also did a spinal tap & have ruled out meningitis. We will have results for 3 other tests tomorrow that were done from the spinal. Also, an MRI will be done tomorrow, his 2nd in 10 days. They want to make sure everything is ok. I assume they will do another EEG also.
Mentions of a metabolic issue (such as sugar low/high), reaction to medication, autoimmune system attacking motor functions. If anyone has any experience w/ any of the mentioned issues, please comment.
Keep the prayers coming!
8 comments:
Hi Astrid-
I'm so sorry to hear about your little Ian. I don't have much time, but wanted to mention two things.
One of my friends little girl got deathly ill when she was about 18 months old. The biggest thing was she couldn't maintain her blood sugar levels and had several seizures. She went through months and months of all kinds of testing but they could never pinpoint what was wrong. Finally someone noticed that her symptoms started shortly after getting her 18 month Dtap vaccination. I just wanted to throw that out there in case this was a possiblity for you guys.
If so, I can put you in touch with my friend and she can probably answer your questions better than me. E-mail me a jlow2474@aol.com if you think it might be helpful
I'll keep Ian in my prayers still honey! (hugs) I can't imagine how hard this has got to be!
You must be beside yourself. Hang in there...I'm still praying.
I know how scary this is for you right now, I went through the almost exact same thing with Luke in August last year. I am praying for Ian. Is he on any anti seizure medications? when Luke was first put on his he went from a normal (besides the siezures) kid to one that would hit and bit and scream all day. The doctor changed his medication and now he is almost back to being the same little boy again. Also after Luke has a seizure he is very lethargic and tired. I am so so sorry Ian is still acting "off" trust your mommy instincts!!
lots of prayers coming from Oklahoma!!
Have they considered epilepsy? My brother was diagnosed with this at a very early age (before 1 year old)
So far the tests are not showing epiliepsy. I'm not sure that they have ruled it out though.
Did anyone mention the possibility of Guillan Barret Syndrome? It sometimes follows viral infections (including the flu) and causes muscle weakness (to the point of paralysis) and can cause some changes in the spinal fluid that help in the diagnosis.
The good news about it is that it is self limited and patients recover completely.
I think the neurologist must have it on his mind. As scary as it might seem, I'm hoping it is what Ian has and nothing worse.
I've been following your blog since you were pregnant and I'm praying foor your miracle boy
Sherry
My son went through a similar circumstances. We went through all kinds of testing everything under the sun was negative. He was 11 months old (9 adjusted) He is now 18 months old and autistic. I think this is when it all started. Certainly does not mean that is what is going on with Ian and I pray it is not but I just wanted to tell you. I hope Ian gets well soon.
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