Monday, January 26, 2009

Post-infectious Cerebillitis

Ian has been officially diagnosed tonight. Ian has a condition call post-infectious cerebillitis. Basically, his body's autoimmune system went in to hyperdrive & after finishing off the flu decided it needed to continue to destroy things so the antibodies decided his central nervous system sounded good. I'd like to refer to the antibodies as being on crack.

The course of treatment is 5 days of pretty serious steriods, enough to keep him in the hospital through Saturday. It is going to aggravate him, not allowing him to sleep well or be able to sit still much but this is what we have to do to shut this thing down. He will also need some physical therapy & possibly occupational therapy to catch him up on the skills he may have lost. It could also be that he regains them after the course of treatment but there isn't a way to know until after.

I am so relieved at this point. I can't even begin to let you all know how much your support has meant to us. We still need prayers. The next 5 days are going to be hell for Ianchito.

11 comments:

Lori said...

I am so glad you got a diagnosis and it is treatable. I will keep praying for Ian as he endures the steroids and works on getting his skills back.

Brittanie said...

I'm so glad you got a diagnosis! Many prayers coming his way still!

Megan Jannise said...

Astrid,
I am so glad Ian is going to be OK. We are praying for a swift, easy recovery. And, if anyone can get him back to normal, it is you. You are an awesome Mom, remember that.

Lots of love!

Megan and the trio

Raising Triplets in High Style said...

WOW! I am so grateful that you have a diagnosis and it's treatable. I'm praying that Ian recovers and gets back to his old self soon. Amy & girls (from TC)

~ MJ ~ said...

I know this has to be so hard Astrid but thankfully it is treatable. You all continue to be in my thoughts and prayers. Take care.

Terry Armistead said...

Sending you all some extra strength! Poor little guy! I hope in a few weeks this will all be a fading memory!

Following Him said...

YAY for a diagnoses! Boo for the hospital stay :( Hope Mr. Ian feels better and he has a SPEEDY recovery!!! Prayers pouring out to you guys! Hang in there :)
~Elyse~

Lindsay said...

I am so glad they finally figured it out. Sending out T&P for a speedy recovery!

Angela said...

I've been following your blog for a while, since I saw the link from JM. I was really routing for Ian, I'm so glad you have a diagnosis, and he's on his way to recovery!

leehuck said...

Occupational Therapy (OT) helps people maximize their ability to participate in life. View the site for more info.

leehuck said...

A career as an occupational therapy assistant will offer you a great number of benefits, rewards and other positive factors. From one person to the next, every individual may have a different reason for getting started down this path, or for why they love it as much as they do. Visit http://occupationaltherapyschoolsite.com for the details.